Wednesday, April 24, 2019

We officially started solids!

Do you know what 1 Goldfish weighs? 630mg! Today we were bumped to 100mg which is time to start solids and ditch that awful wheat infused water solution. The nurse walked in and broke up 1 goldfish and weighed it. Mason ate a fraction of 1 goldfish! This sounds so silly but it's amazing. He was only slightly nervous and asked the nurse if he would throw up after he ate it, to which she replied nope! Then it was down the hatch!
Patrick and Carter are here too because I was a nervous wreck. This is the very food that has sent him into anaphylaxis.
We can use either Cheeze-Its or Goldfish at home and are going home with a kitchen scale and pill organizer so I can dose out his days all at one time. He is doing great so far, being monitored by the Dr.
Incase anyone is wondering, Carter is ecstatic that we can have any kind of cheese cracker in the house now. 😂.
So dosing this way is going to be so much easier. I dont have to worry about refrigeration or transporting his dose to places if we wont be home.
Will be back in the office in 3 weeks to double our dose if all goes well!


Wednesday, April 3, 2019

Here we go again!

So it has been 3 weeks since our last appointment. 3 weeks of dosing daily at home and a small bump in the road. Patrick came with us for today's appointment. I was happy to have him there after the panic and stress of the last one.
Today we were updosed to 50mg/5ml of wheat. So double what we have been doing. Mason handled it great and passed the rest period in the office and we were on our way!
The next step from here, once doubled is 100mg/5ml. This is an amount measurable in SOLIDS, so we will be moving on to Goldfish when we return. GOLDFISH! Do I even need to mention how stoked Carter is that we will have this in the house now?! No more liquid syringe doses. Mason was really nervous to hear this news and I think that may be when he second guesses all of this the most. I may need a small army to escort us for support for that one. (Figuratively of course...because the rooms are small and it's hot in there! I already know some of you are jumping at the chance to come! 😂😂😂 I digress.)
The next appointment is a little iffy on the date though due to Milestone testing at school, and the dr office not having afternoon appointments. So we may be extending doses and updosing at home instead of going to the office in 2 weeks. If that's the case, it will be 4 more weeks until solids (they don't want you switching to solids on your own at home and we are totally good with that.) He will just be getting 200mg in a syringe at that point. Will know more next week about the schedule, either way, next time we go into the office it will be to eat Goldfish.

Getting super thick now. 😳

Gritty and awful but he got it down

Champ

Distracting himself with a reading challenge from school.