The 2 weeks after

Well, there is almost nothing to report here, which is a good thing. Mason had a tiny hive the first day of receiving his dose at home. I texted the doctor to let him know and he said it was okay, no need to adjust the dose or do anything. We never saw any other side effects in the 2 weeks that would follow. We traveled to Orlando for winter break and were given a "dry bottle" to take with us. This means a bottle with the flour in it and we just add the water when we get where we're going, since the bottle needs to be refrigerated. That definitely made it easier to travel with. Timing the dose each day is a habit at home, we normally do it at 3pm, right after school so I can keep an eye on him and I know he will be snacking and doing homework. There needs to be 1-1.5 hours of rest after a dose. So if it's an activity day, we do it after that around dinner time. When traveling, we had to move the times each day around. For example, the day we went to Animal Kingdom, there would be no way to refrigerate either his syringe already filled or even the bottle. No, I wouldn't be carrying a cooler around with me. So we did it in the morning before we left (knowing there would be 30 minutes to drive there, the team, security line etc. plenty of downtime.) He did great during the trip, and happy to report nothing happened to the little glass bottle. We resumed our normal schedule once we returned home.

At Animal Kingdom about 2 hours after a dose