Today was Big!

In the allergy world, today was big. No, it was major. These last 2 weeks, we have been at a dose of 6mg of wheat in 5ml of water. We tested for 12mg in 5ml today and he did great at the end of the hour. We snacked and did our homework as usual. (Shoutout to his 3rd grade teacher!) 😉

See...not just devices!

So brave

Charmay, she keeps me sane. Well, I use this term loosely.

12mg in 5ml

We discussed what maintenance vs eating freely would look like for Mason. Maintenance is just the amount of allergen you would need to consume daily to keep from having a reaction (keeping in mind he will always be allergic, just able to tolerate it.) Eating freely means he can eat whatever he wants on top of his maintenance dose of said allergen. He let us know that this would be attainable for Mason!  (There are some people that can only get as far as a maintenance dose and happy with that and I wanted to make sure he knew we were hoping for more than just that.) He talked about how well he has done this month and how he has no other food allergies and asked if we could stay a little longer because he wanted to double his dose again and see. We were a little surprised when he came in with 25mg in 5ml to take right then and there. Ok, surprised is an understatement. My heart jumped into my throat and I felt a little weak but I put my trust in this doctor so here we go. Mason looked worried and questioned if we really should be having another dose so soon! Doctor mixed this one up himself and administered rather than the nurse who usually does it. He then gave him another 5ml. Then another 5ml. So yes, 10 (threshold!) On top of the 5 he had earlier. He told us that the first dose was already absorbed and gone, so not to worry. But ok, sure bring on the poison. 😳 When I tell you I really needed to sit down, wow. Patrick and I were texting like crazy and he said "It's like that feeling just before you crest the hill on the rollercoaster." Mason reluctantly took both down and went back to playing on his device leaving me to panic alone. The nurse came in to discuss and saw the look on my face. She reassured me that he does this sometimes with certain patients. He has been doing this for a while and based on toleration in timing, can really gauge well if the patient can tolerate this. He did amazingly well! We left shortly before the 30 minutes were up as cleared by doc and went home. This mixture looks like a milkshake as compared to the others. No wonder I almost had a heart attack, it was quadruple the previous dose. This can only lead me to believe we will be doing 50 next visit. Solid food starts at 100 or 150 mg. So stay tuned....

I'll just call this 😳😬